Interventions to support transitions in care for children and families with complex health care needs in the community
In this one-year project, we are engaged in conducting a scoping review of the literature to shed light on interventions that support transitions in care occurring from: 1) diagnosis to age 19 years; and 2) pediatric to adult care, for youth aged between 14 and 25 years of age. These children and youth experience many transitions, moving across stages of their conditions, from childhood to adulthood, between care settings, or from hospital to home/school or vice versa. Transitions are often challenging not only for children, but also for their families and care providers.
Findings from our project, which are in line with primary care priorities established by NB, NS, PEI, and NL, will lead to recommendations for policy and practice, and will inform future research to support transitions in care for children with complex health care needs and their families. At the heart of this proposal are patients who will have a meaningful role in the project’s design and implementation. Other members of the research team include researchers, clinicians, librarians, policy makers, and community members across the Atlantic Provinces. I am the Nominated Principal Investigator of this one-year grant. We secured $100,000, of which $25,000 is from CIHR; $35,500 from matching partners across Atlantic Canada; and the rest are in-kind contributions. Our team scored second in the competition. This project is in the data analysis and writing phase and should be completed by summer 2020.