CIHR Catalyst Grant: Patient-Oriented Research
Determining research priorities and building research capacity to improve health service delivery for individuals with complex care needs and their caregivers
Individuals with complex care needs represent a small percentage of the population, but account for a high percentage of healthcare and social services utilization. As a result, these individuals often require care from a team of providers. Failure to connect to needed services leads to negative experiences for patients, caregivers, and the care team. There is a need for more research to improve health service delivery for individuals with complex care needs and their caregivers. There is also an important shift in the way that health research is being conducted, whereby patients and their caregivers are involved as much and as meaningfully as possible throughout the research process. The purpose of this project is to build capacity for engaging patients and their caregivers throughout the research process and to identify research priorities for individuals with complex care needs and their caregivers. This study will lead to three main outcomes: a list of top research priorities that will inform the development of future grant applications, an online patient-oriented research training course, and a patient panel to partner on future grant applications.